Tune in as IBD Social Circle patient advocates share their stories about living with IBD. Watch firsthand stories or check out past events to see the advocates and special guests tackle tough topics on Crohn’s disease and ulcerative colitis.
Through the lens of his own patient journey, Cedric discusses the disparities people of color often face when getting diagnosed with IBD and other chronic conditions.
Jaime shares the difficulties she faced getting diagnosed with Crohn’s disease and her perspective as a patient advocate.
Amber tells the story of her early ulcerative colitis diagnosis and the importance of support within the IBD community.
Ryan talks about how his diagnosis with Crohn’s disease in his 30s disrupted his life but ultimately set him on a course to empower others.
Megan and Aaron discuss their journeys with ulcerative colitis and Crohn’s disease, respectively, and how IBD Social Circle helped them find a community of support.
Empowered by the community she’s been able to form, Shawntel recounts how her IBD diagnosis journey informs her advocacy.
Gaylyn details how she overcame stigma to embrace body positivity in light of her experiences living with IBD.
Brooke describes how her experiences as a mom living with IBD helped her chart a course as a patient advocate.
In our event, “Intersectionality in IBD,” patient advocates discuss living with IBD and how it is only one aspect of their personalities, in addition to other passions, responsibilities and values that are core to who they are.
Our panelists, including patient advocates and a prominent gastroenterologist, discuss how COVID-19 impacted overall IBD management, both physically and mentally, as well as the patient experience during the pandemic.
IBDSC patient advocates Aaron and Amber sat down with Dr. Neilanjan Nandi to discuss common misconceptions associated with Crohn’s disease and ulcerative colitis. Listen as they debunk myths about IBD that patients and doctors hear most often on topics such as pregnancy, surgery, remission, and more.
In this discussion, IBDSC advocate Dr. Cedric Pulliam speaks with gastroenterologist Dr. Sophie Balzora and psychologist Dr. Bently Gibson about the barriers in IBD care. Listen as they explain the importance of representation in IBD research and the ways that the IBD community can work together to bridge the care gap for people of all backgrounds living with Crohn’s disease and ulcerative colitis.